• Team Audrey

    • Non-Profit Organization
    1701 Bronco Lane
    Vienna, VA 22182
    (540) 270-9893
    Monday - Friday 9am-5pm
    • About

      Our daughter, Audrey, was diagnosed with HLH (hemophagocytic lymphohistiocytosis) on November 12th, 2015, only 11 days after her first birthday. After A LOT of bloodwork, it was determined that Audrey had “primary” HLH meaning she had inherited the disease from me and my husband, Adam, and that there had been a “trigger” (virus, illness, etc.) that caused the HLH to suddenly begin attacking her little body. In other words, Audrey’s immune system had been sent into overdrive and was going to kill her if something wasn’t done quickly. We were told that Audrey would need chemotherapy, heavy steroids (plus lots of other medications) as well as a bone marrow transplant in order to survive. The news was absolutely devastating.

      Audrey followed the 8-week HLH protocol at our home clinic and hospital in Northern VA, but we knew that when it came time for the actual bone marrow transplant we wanted to be in Cincinnati with some of the best HLH doctors in the World. Soon after Audrey was diagnosed, Team Audrey began evolving. This group consisted of amazing, kind-hearted friends, family and even strangers that helped us get through this terribly difficult time. Now that the tough times are (hopefully) behind us and we can look forward to the future, it is time to give back to the community and help other HLH patients and their families.

      We will be forever grateful for the people who cared for us during our time of need but now it is time for us to be the ones to lend a helping hand.

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